full of life
Story of a family of 10, who live in an historic home in a small town, and try to adhere to the philosophy "Blessed are the flexible for we shall not be bent out of shape."
Tuesday, June 02, 2009
Zipperhead
Next I ran a few errands, then returned home and took on a huge project--cleaning T. and I's room. It was messier than anything I've ever seen. The floor was literally ankle deep in clothing and garbage--crumpled papers, candy wrappers, you name it. Overlaying all of that was about 10 balls of yarn, half unrolled and tangled together forming a spiderweb around the room. Every other surface in the room was covered as well. I neared completion shortly after I. returned home from school. Instead of being appreciative, she was upset that I'd cleaned her room, although I had been warning them that this would happen for several weeks. After arguing with her, I carried a large bag of trash and a pair of razor sharp kitchen scissors down the stairs. When I got to the bottom of the stairs, I twisted my ankle on the pair of shoes left there by L. and fell, hitting my head on a large cedar post at the foot of the stairs. Luckily I was not impaled by the scissors, but did give myself, as the ER dr. described it, a "closed head injury."
I now have 6 staples in the back of my head, which I will have for a week. I received a tetanus shot and a CT scan. Thankfully, I do not have a concussion. I am also grateful that I did not need to have the hair shaved around the cut, since I am already having hair issues!
My next treatment is tomorrow and I am actually glad, so that I can have a restful day. The ER dr. told me to take it easy and not lift anything heavy, LOL. I have a 35 lb. toddler!
Sunday, May 17, 2009
Silly sun gear
Since the sun seems to exacerbate my rashes, here I am with my hat and sunglasses, fully sunscreened. At least this hat is light, has built in spf, a string to keep it from blowing away, and is comfortable. Last year I had a straw hat that was hot, tight, heavy and blew off my head easily.
Cutest Baby on the Beach
M. loved the beach. I bought everyone a wetsuit since we knew the water would be cold and the air wouldn't be all that hot. They turned out to be useful since we had unseasonably cold weather.
Ready to parasail!
We also visited Myrtle Beach during spring break, and I did something I've always wanted to, parasail! Here are D., L, me and J. waiting our turn.
At the Top
Here we all are at the top of the Chimney Rock trail. Front row: T., I., K., and A.
Back row: Paula, D., L., J., Daryl and M. in the backpack.
At the Falls
We drove down to Asheville, NC for spring break. This is J., L. and D. at a waterfall near Chimney Rock.
Prom 2009
We hosted a before prom photo shoot at our house, as well as an after the prom party. Aren't these kids beautiful? Not all of them attended the party. It was just 3 couples, and the other 2 girls (not D's date) had to be home earlier because they were sophomores. After they left, it was 3 guys and 1 girl!
Another Health Update
I have been feeling really well. I am still doing the IVIG treatments once every two weeks and they still seem to be working. I am still doing PT and am slowly regaining strength. I have been very active, and very happy. I am back down to 9mg prednisone daily, and start on 8mg tomorrow. I am nervous about this because that is the level at which the really bad rash appeared last time. I have had some minor spots of rash here and there as I have tapered, and some areas which just never went away, like on the backs of my hands and my elbows. To me, this means the disease is still active. If it were not, then nothing would happen as I tapered the prednisone. I am worried that if I discontinue the treatments entirely, the disease will come roaring back. Only time will tell. The plan is that I will reduce the frequency of the treatments to once a month in June.
Meanwhile, there is a lot of complicated medical stuff that I have been researching related to possible causes/cures/treatments that I want to discuss in detail with the rheumatologist at my next appointment.
Medical appointments and taking care of myself (PT, IVIG treatments, massage, acupuncture, rheumatologist, exercising regularly) still comprise a half time job. It is good to focus on myself, I guess, and I know that I am lucky that I can make the time and can afford the complementary medicine as well as the traditional.
Please keep me in your prayers as I continue to taper the prednisone.
Saturday, February 28, 2009
Troubles with Babyzilla
I know it's attention getting behavior, since usually 2-3 people run over to help the screaming victim. M. thinks this is hilarious. I have tried the following negative consequences: one minute timeout (he hates it but immediately tries to pull someone's hair when you release him), pulling his hair (thinks this is funny and will pull his own hair), a swat on the bottom or a slap on the hand (thinks this is funny too). Obviously I don't want to really harm him, and I don't believe in spanking especially when the child is only 15 months old, but this is a serious problem. Anyone out there been through it and have any suggestions?
I have tried spending more positive time with him, but recently while snuggling and kissing him, he grabbed my hair and ripped out a large handful. I was incensed. Since Daryl basically has no hair, he has been trying to spend more time roughhousing with him.
Boredom is another issue. Due to the weather, he rarely goes outdoors. Since he doesn't behave that well in the car (screams) or in stores, and I have a plethora of babysitters, he rarely leaves the house. If he does go somewhere, it is often a roundtrip to pick up a sibling where he doesn't get out of the car. Such is the life of the eighth child. Anyway, we believe he is bored and that may contribute to the hair pulling, so are attempting to get him out more. Also, if he gets more practice he might behave better in public. Right now it is an endless cycle--why would I take a difficult child with me if I don't have to? How will he learn to behave better without any practice? And so on....
Valentine's Day Visitor
I did a Valentine's Day redo on Monday, featuring a nice family dinner of spareribs, roasted potatoes, and salad, with the traditional heart shaped butter cake frosted with whipped cream and decorated with fresh raspberries for dessert. See the archives if you want a photo!
I'm Improving!
I started with weekly IV immunoglobulin treatments for a month, and then my rheumatolgoist reduced the frequency to once every 2 weeks. They do take 5-6 hours, which is inconvenient, but worth it. The "liquid gold", as I call it, seems to be helping. Hopefully I will be able to reduce the frequency to once a month, and maybe even discontinue it entirely.
Thanks for your prayers, and please keep praying that as I taper the prednisone (at a rate of 1 mg every 2 weeks) I don't experience a flareup of symptoms.
For the moment, life is great. I am enjoying life and my family again.
Thursday, February 05, 2009
Nell Dorr
Sunday, January 18, 2009
Saturday, January 17, 2009
Health Update
Well, here's the news...I've had a setback.
I was taking Humira, which was supposed to be putting my illness, dermatomyositis, into remission, along with prednisone to control the symptoms. I was tapering the prednisone 1mg per week.
In early Nov. I began to have some puffiness around my eyes and small rash spots appeared. I called the rheumatologist and he said that was normal when tapering prednisone--my body was "complaining" about the lower dose but that I'd get used to it. The rash itched, but I put cortisone cream on it and that kept it from bothering me too much. When I lowered the dose from 8 to 7 mg on the day after Thanksgiving, the rash went wild and spread all over the sides of my neck, my chest, breast, armpits, abdomen and hips. It became very itchy, red and raised like poison ivy, and the cortisone cream no longer helped. Whenever i got warm, the rash got worse, and it also made me feel really hot--the rash radiated heat like a sunburn--so it was a cycle. My hands started to swell a little too. I called rheumatologist and he had me raise the prednisone dose to 8 mg and then to 10mg, neither of which helped.
I saw the rheumatologist on Dec. 15 and learned that my muscle enzymes were elevated again as well. He had me take a bigger dose of prednisone again--3 days of 40mg, then 30 mg until today, when I can go down to 20, then start tapering 1 mg per week again. Based on my symptoms and muscle enzymes he said that the Humira is either no longer working or never really worked but that was being masked by the prednisone.
Today I am beginning a new treatment--IV infusions of immunoglobulin, which is pooled antibodies from other people. The good thing about this treatment is it is more proven effective--it works for 90% of people and my dr. has never had it not work. The other good thing is that since it is pooled antibodies from other people, instead of being immunosupressed I will have a better working immune system. The bad thing is that initially I will take it weekly for 4 weeks, then go to every other week, and eventually monthly, and it takes 5 hours to infuse it. It is also very expensive, but luckily my insurance company agreed to pay for it.
I am also taking big doses of the antihistamine Allegra to help with the rash, which is FINALLY subsiding.
Lastly, I read about an alternative treatment with low dose antibiotics based on the theory that certain autoimmune illnesses, including mine, are caused by a low level infection with mycoplasma, which causes walking pneumonia. Interestingly, 2 of my kids had mycoplasma pneumonia in late Jan. 2008 and my first symptom appeared in early April. My dr. is willing to try this at the same time as the other treatments.
Although I look normal, and most people don't realize that I am ill, this illness has made my every day life so much more difficult and physically exhausting. To give you a few examples: I have lost range of motion of my arms, so I can no longer undo or do my bra behind me--I put it on in front and twist it around. I also struggle to get my second arm into a jacket sleeve. Because my arms are weak I have trouble pulling shirts over my head. Recently I was in Kohl's and tried on 4 sweaters. I couldn't get the last one off because my arms were worn out after taking off the first 3. After I waited a couple of minutes I was able to, but I was really panicked for a minute or 2--I didn't want to have to ask a stranger for help.
My leg muscles are weak and stiff, so it's hard to crouch down or get up off the floor. In general I am more awkward and clumsy--I drop things all the time with my numb hands and I fall more easily and have more trouble catching myself and getting back up, so I just feel more cautious and fragile and OLD. It is a hard adjustment since I have always been physically fit and very active and strong. My dr. had me discontinue the physical therapy until my muscle enzymes return to normal again because I can damage my muscles more by exercising them while they are inflamed. That was frustrating since I am so eager to get my strength back!
The numb hands also continue to make zippers and buttons and opening wrappers of packages or bottles and jars very difficult. So I am loving the winter coat season with young children!
Taking care of M. is by far the biggest problem. At 12 months he weighs 29 lbs. and is 33" tall--literally as big or bigger than many of my kids were at age 2! It often takes me 2 tries to lift him off the floor, and it is a struggle to lift him in and out of the highchair, carseat, shopping cart. He's not old enough yet to be managed or directed--if he walks he won't hold my hand or walk in the direction I want, sits down, etc. He is also by far my most rambunctious toddler. and although he is happy and easygoing, he never stops for a second--he is a whirlwind of activity. Despite babyproofing efforts, and with the "help" of my 4 and 5yos , there is always something he shouldn't have or do available. So it's exhausting keeping an eye on him. He's fast and alert--the instant the gate is left open he's up the stairs in a flash, or out the door to the outside or garage, etc. He doesn't like toys much, and knows how to pry the backs off of all the remotes in the house and get the batteries out.
NEW UPDATE--As of mid Jan. 2009 I have received 3 treatments. I am feeling really good due to the increased dose of prednisone, and my labs were normal BEFORE the first IVIG treatment. I have my last scheduled treatment next Tues. and I haven't heard from the rheumatologist about whether or not he will want me to continue and how frequently. I am wondering how he will tell if the treatment is working, since the prednisone alone created a lot of improvement. I am currently at 19mg per day, tapering 1 mg per week. I didn't start to really have noticeable symptoms until I hit 10mg last time, which will be several months from now.
The rash is 95% gone, although I still have some itching, and I have discontinued the antihistamines. I look great, because the prednisone removed all the swelling around my eyes. It also gives me lots of energy which is really nice.
Please pray that this new treatment works and I am cured!
New Year's 2009
Here is our yearly family synopsis:
2008 was a year of travel for us. We visited Disneyworld for the first time for a long weekend in January, which was a fun but tiring trip. In April we went back to Florida for spring break, staying on North Captiva Island, a tiny island that doesn't allow any vehicles, where we rested and rejuvenated on the beach. In June we went to Telluride, Colorado, where we rented a house with our dear friends the XXXXX's and spent a week taking advantage of the hiking, mountain biking, whitewater rafting, and scenery in the area.
D., 16, played basketball last winter and ran track in the spring. The biggest event for him during the past year by far was getting his driver's license in June, which enabled him to work this summer for Daryl's company and to begin dating. During the summer he also went on a volunteer service trip with the National Relief Network, organized by our church, to Parkersburg, Iowa to do post tornado cleanup and on a hiking trip with friends to the top of Mt. Whitney in CA (the tallest mountain in the continental United States). This fall he was a starting outside linebacker on the varsity football team, making 67 tackles during the season, earning his varsity letter and all-conference honorable mention.
J., 14, ran track again last spring. She also volunteered for the National Relief Network service trip to Iowa last summer. She attended marching band and cross country camps last summer as well, which prepared her to run on the cross country team and march in the marching band this fall. The first semester of her freshman year of high school was a busy one! In September J. received the sacrament of Confirmation in the Catholic Church, which was a proud moment for all of us.
L., now 13, (we have 3 teens now!) continues to play soccer, his first love, and played football this fall and basketball in the early winter as well. He has also continued playing the clarinet. Ever the social butterfly, he is now beginning to get phone calls from girls and receive invitations to coed get togethers. He began middle school this fall and is really enjoying it.
I., 11, continues to play both clarinet and piano. She enjoys arts and crafts and ceramics as well. Always a fashionista, she spends a lot of time "shopping" on the internet and selecting just the right outfit to wear to school the next day.
T., 8, has found her niche with a horseback trail riding group. She loves the riding and has made some new friends in the group as well. She is in the 3rd grade now and really blossoming. T. experienced the sacrament of First Eucharist in April
K., 5, began Kindergarten this fall. He is attending a private program run by the preschool that A. attends. We were able to select the days he attends so that the two of them could spend more time together than would have been possible if he had attended the daily afternoon kindergarten he was assigned at the public school and A. attended preschool 3 mornings a week. They are the best of friends (and, at times, worst of enemies!) so this was important for us. He also enjoys a smaller class size in the private school. He is extremely curious and clever, and loves to learn. Learning to read is opening up a whole new world for him.
A., 4, is somewhat shy and had a hard time adjusting to the new preschool at first, but is really enjoying it now. Not to be left behind by K., she knows all of the letters and most of their sounds. She loves to draw and write and can write anything if you help her spell it.
M., 1, is sometimes known as Babyzilla. He is extremely active and rambunctious, and prefers making messes and getting into things around the house to playing with toys. He is by far our busiest toddler, as well as our largest, weighing in at 29 lbs. and measuring 33" tall at a year old.
All of the kids continue to do very well in school, working hard and enjoying academic success.
Daryl completed his year of sabbatical at the University at the end of August, and is back to a full teaching and research load. He continues to direct a research center at Michigan. He also continues on as CEO of his company, which is doing well, having formed a partnership with a large corporation during the past year and grown in revenue and people.
Paula had the most difficult year of any family member. In June she developed an autoimmune illness called dermatomyositis, which is characterized by a variety of rashes and skin disorders and muscle weakness. The cause of the illness is unknown, although there are many theories implicating parasites, bacteria, viruses and intense sun exposure, any of which might trigger the immune system to begin overreacting and attacking the body. Initially she had a lot of fatigue, hand numbness, tingling and swelling, and joint pain, as well as muscle weakness in her shoulders and hips. These symptoms made it difficult to do simple tasks like opening bottles and jars, doing buttons, zippers and snaps, etc. It has also been very difficult to lift and care for M., since he is so heavy to lift in and out of the carseat, highchair and stroller, and resists every diaper and clothing change. She was lucky to be diagnosed quickly, and began taking steroids to control the symptoms and was treated with a somewhat experimental drug called Humira from Aug.-Nov. while slowly tapering the steroids. The hope was that the Humira would put the disease into remission, but as the steroid dose got lower the symptoms returned and lab results confirmed that the disease was still active. This week she begins a new treatment, IV immunoglobulin, which has more proven success (90%) with dermatomyositis. The disadvantage to this treatment is that it takes 4-5 hours to receive an IV infusion of the medication, which she will receive weekly for the first month, and hopefully less frequently as time goes on, while tapering the steroids once again. She plans to use the time spent receiving the treatments to 1) address these cards! 2) read and 3) catch up on photo albums. If you think of it, please pray that the new treatment is successful!
We hope that 2008 was a good year for all of you, and send you our wishes for a happy and healthy 2009!
Sunday, November 30, 2008
Is the New Blog Working?
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Obamopoly3 hours ago
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About Me
- Paula
- SE Michigan, United States
- Mother to 8 fabulous kids, ages 14 months to 16 years! Married for 21 years to my best friend.





























